سنگینی دردها و تمرین صبوری با بدن: پدیدارشناسی تجربه‌ی زیسته‌ی دردهای مزمن در بیماران مبتلا به ام-اس

نوع مقاله : مقاله پژوهشی

نویسنده

استادیار جامعه شناسی دانشگاه کردستان، کردستان، ایران

چکیده

زندگی با بیماری مزمن فرایندی طولانی‌مدت از مواجهه با سیمپتوم‌ها، زخم‌ها، تشخیص و درک این موقعیت و بازمفهوم‌سازی و بازسازی روایی آینده‌ی فرد بیمار است. دردهای مزمن یکی از آن سیمپتوم‌های پیچیده‌ای است که بیماران در زندگی روزمره‌ی خود، مرئی و نامرئی تجربه می‌کنند. ایده‌ی نظری مقاله این است که دردهای مزمن در بیماری‌های مزمن متضمن مدارایی طولانی‌مدت با بدن هستند، تمرین طولانی از زیستن با بدنی غیرقابل‌پیش‌بینی و دردهایی که مرئی و نامرئی، با دلیل و بی‌دلیل در زمانی که انتظارش را ندارید، سر می‌رسند. هدف من در این مقاله نشان‌دادن این ایده است که درد مزمن چگونه و به‌واسطه‌ی چه شیوه‌هایی شکلی از رنج است؟ مفروضه­ی ما در این رابطه کنارگذاشتن نظریه‌های نوروفیزیولوژیکی است که درد را به حسی جسمی و تنانی و استوار بر پایه‌ی واکنش مغز تقلیل می‌دهند. براین اساس به مطالعه پدیدارشناختی تجربه زیسته دردهای مزمن در بیماران مبتلا به ام-اس پرداخته­ایم. در این کاوش دشوار در میانه‌ی خاطرات ازهم‌گسیخته، استعاره‌های الهیاتی، دل‌نوشته‌های احساسی و غیره، پنج مضمون بنیادی خود را آشکار ساخته که عبارت‌اند از: آسیب‌پذیری و حس شکنندگی، درد در بنیان تجربه زندگی، ترس از معلولیت و تمرین مستمر مدارا با بدن و نارضایتی تنانه و شکایت از بدن.

کلیدواژه‌ها


عنوان مقاله [English]

The Burden of Pain and Practicing Patience with the Body: The Phenomenology of Lived Experience of Chronic Pains in MS Patients

نویسنده [English]

  • Kamal Khaleghpanah
Assistant Professor of Sociology, University of Kurdistan,Kurdistan, Iran
چکیده [English]

Living with a chronic disease is a long-lasting process of experiencing symptoms and pain, recognizing and understanding this situation, and the re-conceptualizing and reconstructing the future of the person suffering from it. Chronic pains are among the complicated symptoms experienced by patients both perceptibly and imperceptibly in their everyday life. The theoretical idea of the article is that chronic pains resulting from chronic require endless patience with the body. They require a kind coexistence with an unpredictable body and the perceptible and imperceptible pains that erupt at times least expected. This article tries to show how and in what ways chronic pain is a kind of suffering. In this article neurophysiological theories that reduce pain to a bodily feeling caused by the reaction of the brain are pushed aside and the lived experience of chronic pains in MS patients is phenomenologically studied. Through this investigation into disrupted memories, divine metaphors and sensational personal writings including fear of disability and constant practice of patience with the body, bodily dissatisfaction, and complaints of the body.
sability, practicing tolerance toward the body, and discontentment with and complaining about the body.

کلیدواژه‌ها [English]

  • Chronic Pain
  • MS
  • Practicing Patience
  • Vulnerability
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